22q Family Ambassador Platform

My22qFamily.org

Allow us to introduce the 22q non-Profit Organizations we love to support and spread awareness for. These organizations contribute to he 22q community in amazing ways. Please learn a little more about them by clicking on their respective links.

Welcome

Run 2.2 for 22q

Run 2.2 for 22q

22q @ the Zoo

22q Camp

My Child has 22q

22q11.2 Deletion Syndrome may be as common as Down Syndrome, yet very few people are aware of this genetic syndrome. 22qDS can cause learning differences, developmental delays, heart defects, poor immune system, palate abnormalities, and low levels of calcium in the blood. Every aspect of 22q is treatable, and early diagnosis and treatment of each symptom can improve general outcomes.This video shares the stories of several families affected by 22q to bring awareness to the syndrome.

The 22q Community

3rd Annual Run/Walk

Run 2.2 for 22q

We Wear Red...Let's get walking or running to raise awareness and funds for 22q. This are taking this virtual event, and making it a reality and will take place on Sunday, May 25, 2024. Whether you sign up to run or walk, let's get moving and feel united. 22q is the SECOND MOST COMMON genetic disorder after Down Syndrome, yet it's less known and harder to diagnose. 22q has a rate of occurrence in 1 in 2,000 births and is found in 1 of 68 children born with a heart defect!